KEEPING YOU INFORMED
News & Events
Updates, workshops and meetings from the OPTIMIZE DMD community.
Latest updates
OPTIMIZE DMD and ISCBH Workshop
The OPTIMIZE DMD and ISCBH 2026 Workshop will take place on Friday, June 26, 2026, in conjunction with the International Conference on Children’s Bone Health (ICCBH 2026) in Montreal, Canada. This workshop will bring together international experts in Duchenne Muscular Dystrophy (DMD) care and research to address the growing challenges of osteoporosis and bone health management in DMD. Through presentations and interactive discussions, participants will explore the burden of bone disease, current treatment approaches, implementation barriers, and opportunities to strengthen clinical care across diverse healthcare settings.
Read more
The OPTIMIZE DMD and ISCBH 2026 Workshop will take place on Friday, June 26, 2026, in conjunction with the International Conference on Children's Bone Health (ICCBH 2026) in Montreal, Canada.
This workshop will bring together international experts in Duchenne Muscular Dystrophy (DMD) care and research to address the growing challenges of osteoporosis and bone health management in DMD. Through presentations and interactive discussions, participants will explore the burden of bone disease, current treatment approaches, implementation barriers, and opportunities to strengthen clinical care across diverse healthcare settings.
The workshop will also highlight unmet needs and future priorities for the OPTIMIZE DMD initiative, fostering collaboration among clinicians, researchers, and patient advocates to advance evidence-based care and improve long-term outcomes for individuals living with DMD worldwide.
For additional information, including the workshop agenda and conference program, please visit the
ICCBH 2026 website
.
Workshop schedule: Friday, June 26, 2026 | 8:00–13:00 (EST).
OPTIMIZE DMD Rome 2025 Meeting
The OPTIMIZE DMD Rome 2025 Meeting brings together the Consortium and international DMD experts to discuss adrenal insufficiency, osteoporosis prevention, growth and puberty, sexuality and fertility, and weight management.
Read more
The OPTIMIZE DMD Rome 2025 Meeting will take place from December 3–5, 2025, in Rome. This international gathering will bring together the OPTIMIZE DMD Consortium alongside leading Duchenne muscular dystrophy (DMD) experts and ambassadors from Italy, Belgium, the Netherlands, the United States, and the United Kingdom.
The meeting will focus on key unmet needs in endocrine and bone-health care for individuals with DMD, featuring discussions on adrenal insufficiency, osteoporosis prevention, growth and puberty, sexuality and fertility, and weight management.
Webinar: Steroids and Stress Dosing
OPTIMIZE DMD ambassadors, Drs. Aravindhan Veerapandiyan, David Weber, and Anne Marie Sbrocchi discuss steroid use, stress dosing, and the updated PJ Nicholoff Steroid Protocol in a PPMD-hosted webinar.
Read more
Understanding the Updated PJ Nicholoff Steroid Protocol
OPTIMIZE DMD ambassadors, Drs. Aravindhan Veerapandiyan, David Weber, and Anne Marie Sbrocchi recently participated in a PPMD-hosted webinar to discuss steroid use, stress dosing, and the updated PJ Nicholoff Steroid Protocol. They offered valuable insights into managing steroid treatments, highlighted the significance of stress dosing, and provided guidance to help families navigate the long-term impact of corticosteroid therapy using the PJ Nicholoff Steroid Protocol.