Patient Advocacy
Partnering with leading patient organizations to improve care, education, and quality of life for individuals living with Duchenne muscular dystrophy.
OPTIMIZE DMD is partnered hand-in-hand with Parent Project Muscular Dystrophy (PPMD), the leading U.S. non-profit driving Duchenne muscular dystrophy (DMD) care, research, and advocacy efforts. Since 1994, PPMD has been at the forefront of accelerating research, raising community voices to impact policy, demanding optimal care for every single family, and working to ensure access to approved therapies.
Through this partnership, OPTIMIZE DMD leverages PPMD’s robust advocacy network, educational resources, and commitment to patient-centered progress. Together, we are building a learning health system to transform endocrine and bone health outcomes in DMD through collaboration, innovation, and shared purpose.
What We Do Together
Amplify Patient Voices
Leveraging PPMD’s advocacy network to ensure patient and caregiver voices shape research and policy.
Advance Education
Sharing knowledge and resources to empower families and healthcare professionals worldwide.
Drive Research
Collaborating on research to advance endocrine and bone health care through evidence-based science and international partnerships.
Improve Care
Working together to improve access to care, therapies, and multidisciplinary support for individuals living with Duchenne muscular dystrophy.
Change Outcomes
Building a collaborative network that transforms research into better care, stronger advocacy, and improved health outcomes for individuals living with Duchenne muscular dystrophy.
Stronger together for a better future
Together, we advance patient advocacy, education, research, and clinical care to improve the lives of individuals living with Duchenne muscular dystrophy.